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Coping with the many
issues facing the patient with hydrocephalus can be very stressful. There
are several patient and parent support groups that provide excellent resources
to patients and families. We recommend the Hydrocephalus
Association, based in San Francisco, CA. They have excellent resourse
materials and sponsor conferences for patients and families.
 We
have participated and continue to participate in shunt research studies, trying
to identify a better shunt system.Dr. John Kestle's research interest is in
the design of clinical trials and we continue to participate
in such studies.
- Dr. Kestle is a Principle
Investigator on the multi-center clinical trial to evaluate shunt design.
- We participated in
the multi-center trial to evaluate the Codman programmable shunt valve (the
Medos® valve).
- We are currently participants
in a multi-center clinical trial evaluating the safety of another programmable
shunt valve (the Strata® valve). Dr. Kestle is the Principle Investigator
on this study.
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